WELCOME TO ALS WORLDWIDE
An Oasis in the Desert of Amyotrophic Lateral Sclerosis
ALS WORLDWIDE, created by Stephen and Barbara Byer, is a
not for profit organization for ALS patients and their families to obtain information, advice, direction, support, guidance and, perhaps, most importantly, hope.
Improving the quality of each day matters most for so many. To that end, the newest treatments for symptom relief, dietary needs, range of motion exercises, assistance for respiration, reducing excess salivation and more are discussed and updated frequently.
ALS frequently devastates the entire family system. Support for both patients and family members is available through individual telephone and email contact. Sometimes it helps to just connect with someone who truly understands the challenges of ALS.
Stem cell research has become a global enterprise that offers great promise but also needs clarification and explanation in terms that are understandable to those who are not scientists. Ongoing and upcoming procedures are discussed in detail.
ALS WORLDWIDE brings the needs of the ALS community to the awareness of the public, the political system and the media. Getting Iplex and Increlex, two experimental but effective medications, to those with ALS are examples of our effort in these areas. The Stem Cell procedure in Monterrey Mexico is another example of how ALSWW crosses international borders to help those with ALS.
Our son Ben Byer lost his valiant battle against ALS on July 3, 2008. In his honor and spirit, our commitment to all patients and their families continues until more effective treatments allow those with ALS to live fuller lives with vastly diminished symptoms.
NEWSFLASH
In keeping with our commitment to offer emerging information about stem cell research and conferences, a partial listing of the Stem Cell Conferences offered in 2010 are presented in Conferences. We would like to urge your serious consideration of attending the World Stem Cell Summit in Detroit this September. We plan to attend and have been able to secure favorable rates for those ALS patients and family members that wish to attend. World Stem Cell Summit
Tony Judt, well known historian, author, university professor is a frequent contributor to the New York Review of Books and an ALS patient. We’re pleased to republish NIGHT, his most insightful and moving essay published in January 2010 that captures the essence of ALS. His words offer a deeper understanding to family and friends who struggle to offer support. Additional information can be found at In The Spotlight.
Join the ALS WORLDWIDE mailing list today to receive newsletters and up to date information regularly. Register Now!
|
