WELCOME TO ALS WORLDWIDE
An Oasis in the Desert of Amyotrophic Lateral Sclerosis
ALS WORLDWIDE, created by Stephen and Barbara Byer, is a
not for profit organization for ALS patients and their families to obtain information, advice, direction, support, guidance and, perhaps, most importantly, hope.
Improving the quality of each day matters most for so many. To that end, the newest treatments for symptom relief, dietary needs, range of motion exercises, assistance for respiration, reducing excess salivation and more are discussed and updated frequently.
ALS frequently devastates the entire family system. Support for both patients and family members is available through individual telephone and email contact. Sometimes it helps to just connect with someone who truly understands the challenges of ALS.
Stem cell research has become a global enterprise that offers great promise but also needs clarification and explanation in terms that are understandable to those who are not scientists. Ongoing and upcoming procedures are discussed in detail.
ALS WORLDWIDE brings the needs of the ALS community to the awareness of the public, the political system and the media. Getting Iplex and Increlex, two experimental but effective medications, to those with ALS are examples of our effort in these areas. The Stem Cell procedure in Monterrey Mexico is another example of how ALSWW crosses international borders to help those with ALS.
Our son Ben Byer lost his valiant battle against ALS on July 3, 2008. In his honor and spirit, our commitment to all patients and their families continues until more effective treatments allow those with ALS to live fuller lives with vastly diminished symptoms.
NEWSFLASH
ROADBLOCKS TO STEM CELL RESEARCH
As of September 1, 2010, U.S. government officials say they will appeal a U.S. District Court injunction that stops new federal funding of human embryonic stem cell research. In addition, the FDA has recently issued an injunction against a Colorado clinic, stating that adult autologous stem cell treatments must now be categorized as drugs. A detailed discussion can be read in the current newsletter posted on this website..
CALL FOR ACTION
Tell Congress and the Administration to keep stem cell research open and funded. Send letters to the media. For your assistance, Sample Messages for the FDA, Congress and the Media are available for your usage.
The above ruling has no direct effect on researchers or companies working with private funds, but government funding often initiates the most basic, highest expense and riskiest biological work. A partial list of companies currently working to develop both adult and embryonic stem cells as therapies is available at US FACILITIES.
GRASSROOTS ADVOCACY AWARD TO ALS WORLDWIDE
We are pleased to be receiving this award at the 2010 World Stem Cell Summit being held on October 4-6 at the Detroit Marriot Renaissance Center. Also being honored is Michigan Governor Jennifer M. Granholm, A. Alfred Taubman, the Canadian Stem Cell Network and Laura Jackson. Favorable rates for attendance are available for ALS patients and their caregivers. More information is available at the 2010 World Stem Cell Summit. Information about how you can receive your discount is available at REGISTRATION. This event promises to offer the latest and most impressive programs and presentations on stem cell research and innovation currently underway throughout the world.
METHYLCOBALAMIN UPDATE
Dozens of patients are now on daily intramuscular injections of Methylcobalamin B12. Anyone who would like to participate should contact Stephen Byer as soon as possible for complete information on how to obtain and use methylcobalamin.
The best nutritional supplement available is Nestle's Carnation Instant Breakfast Drink VHC Lactose Free (Very High Calorie). Complete information on why it is so effective and where to purchase it is available in the Self Help section of this website.
Please DONATE to ALS WORLDWIDE today. All donations are tax deductible to the fullest extent allowable by law.
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